Saturday 20 October 2012

September 2012 –Trans cranial electrical stimulation research at the JR


w/c 3rd

Tuesday over to Dan’s for an hour using the Im-AbleX, good hand/arm activity using computer games to move the hand & arm, it was good my arm did ache a bit the day afterwards but all round good arm activity. I am limited to arm work really because of bad achy foot/toe.


I had a Connect meeting over at Hesters Way Community Centre then drove over to the Prestbury Centre where Julie and I did a presentation about Connect and what we do, what we offer. I saw the Scottish lady I initially shared a ward with at Cheltenham, she unfortunately had had another stroke but was doing OK.

On Friday Nik drove me over to the John Radcliffe, FMRIB dept. to have an MRI scan  before the start of the transcranial research next week, very very noisy and typical ’phantom’ feeling on head with the shuddering of the scanner.

Nik did his first real long distance run with Dan on the Sunday.

w/c 10th

Not a particularly exciting week this week I had an hour with Dan on Tuesday, on the Im-AbleX, no leg work again.

On Thursday Nik had a call over on Anglesey with Dave B so I went with him which was very nice, we went and said hi to Mum and had a windy walk on the beach.

The Great Western had their beer and cider festival weekend, Ed did lots of shifts earning the monies!

On the Sunday Nik did another long 18 mile run over towards Snowshill, Springhill I was going out to meet him and got a flat tyre, so called RAC they came out to fix it, couldn’t and my car ended up going on a transporter over to Kwik Fit at Stratford for a new tyre!

w/c 17th

I went to see my Doctor again about my foot, it’s not gout, it’s not a Morton’s neuroma, whilst cutting my toe nails after a bath Nik found hard skin on the top of my third toe of affected left foot, boy did I scream, so we now think that it’s a corn that has been causing me trouble in walking for the past 2 months – thanks Doc for all the unnecessary pain, lack of treadmill exercise, additional drugs & steroid injection!

She agrees and refers me for an NHS chiropodist appointment, which I  then have to chase up, North Cotswolds hospital in Moreton can’t see me until 25th October, another month of pain and no treadmill, so I opt for an appointment at St Paul’s Cheltenham – of which more later!

Today I start my electrical trans cranial stimulation research at the John Radcliffe Oxford, I have to organise a taxi with Leigh because I have no car due to tyre trouble on Sunday!

The physio on my affected left hand and arm is very intensive lifting a weight on my wrist in front of me and to the side, stretching down to my toes, moving a bean bag to 5 points on the table in front of me, scrunching a towel, trying to pick up a cup, and doing all this with a funny headband on and 2 pads where the current or (not) as there might be a placebo, is being passed through. I was knackered and really glad that I had by necessity booked a taxi, I fell asleep all the way back.

So I did this every day for the next 4 days until Friday and the following week. Ed did his practice D of E silver hike over Long Mynd in Shropshire between Thursday and Saturday and they were luckier with the weather this time.

I had taken part in a Ford Open Doors event competition and got to hear of two prizes I won, one was a private tour around Manchester United on 27th Sept and the other was a trip to Jackdaws Castle to meet Jonjo O’Neill and other jockeys have breakfast with them and a tour of the stables, again on the 27th which I couldn’t do because of the research at the JR.

Nik did another 18 mile run on Sunday, and then we went to the Fossebridge Inn to meet up with Kath and Andrew for Nik’s birthday, we had a lovely meal.

w/c 24th

Nik’s birthday today, and Ed goes back to Ashes Hollow for a school Geography trip, and they got pee wet through, so did the camera!

I carry on with the electrical trans cranial stimulation research at the John Radcliffe Oxford Monday to Friday with an follow up MRI scan on the Friday.

I met with Christine Clark the Sister in charge of the ARU at Tewkesbury and she is now the stroke co-ordinator for North Cotswolds.

Charles did the Manchester United tour and Sally O did the Jackdaws Castle tour and they all had a lovely time.

On Friday I met up with Charles at the hospital as his Dad was having 2 more stents fitted, we met at FMRIB after my MRI scan,  he came over later and stayed the night at ours as his Dad had an overnight stay.

Saturday - Nik and I went to see Dan, Nik was on the treadmill and did 12 miles, I went on the Wattbike and really enjoyed it

Sunday - Nik is up bright and early to do a 20 mile run with Dan.

 

1 comment:

JESSICA said...

As a sign of gratitude for how my husband was saved from stroke , i decided to reach out to those still suffering from this.
My husband was diagnosed of stroke and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, he had difficult speaking , and he always complain of muscle weakness and balance disorder . we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and he left the contact of the doctor who had the cure to stroke . I never imagine stroke has a cure not until i contacted him and he assured me my husband will be fine. I got the herbal medication he recommended and my husband used it and in one months he was fully okay even up till this moment he is so full of life. stroke has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my testimony